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National level
Organizations are there to help you. Some reach across the nation, and have different areas of focus. Take a look below at some of the larger ones that have the potential to help.
American Parkinson Disease Association
800-223-2732
Founded in 1961, the APDA bills itself as “ the largest grassroots network dedicated to fighting Parkinson’s disease”. Its website says the organization’s chapters and centers daily “provide the support, education, and research that will help everyone impacted by Parkinson’s disease live life to the fullest”, help unlock the mysteries of Parkinson’s, and ultimately end PD.
Davis Phinney Foundation
866–358-0285
Former Olympic bicyclist Davis Phinney began his foundation in 2004 to promote and fund research and create resources demonstrating the importance of exercise, speech and other elements critical to increasing a person with Parkinson’s quality of life. The foundation’s manual Every Victory Counts® reflects its mission: “We Help People with Parkinson’s Live Well Today.”
Ending Parkinson's Disease
no phone
Launched shortly after the publication of its namesake book in the spring of 2020, Ending Parkinson’s Disease is dedicated to “a bold PACT to Prevent the disease, Advocate for protective policies, Care for patients, and Treat the condition with innovative therapies.” The organization is tackling PD with webinars as well as international committees and resources.
Michael J. Fox Foundation
800-708-7644
Established by actor Michael J. Fox in 2000, "The Michael J. Fox Foundation is dedicated to finding a cure for Parkinson's disease through an aggressively funded research agenda and to ensuring the development of improved therapies for those living with Parkinson's today." Its goal is ”to accelerate the next generation of Parkinson’s disease treatments.”
PMD Alliance
800-223-2732
PMDA was founded in 2015. Its website says “What makes us different? We focus on you first then the disease. Whether a person with the disease, a care partner or friend—we know you have a full life to live. We don't want you to just exist, we want you to thrive.” Supports people “impacted by Parkinson’s disease, dystonia, essential tremor, PSP, and Huntington disease.”
Parkinson's Foundation
800-473-4636
Parkinson’s Foundation was created by the merger of National Parkinson Foundation and Parkinson’s Disease Foundation, both started in 1957. Its website describes it as “A community. An alliance. A movement. Where people living with Parkinson’s, families, caregivers, scientists, advocates, donors and volunteers join forces to improve lives and advance toward a cure.”
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